Library

Language, ideas, knowledge and emotions all come together to help us share our experiences and learn from one another. Here is a collection of things that help inspire and inform us. If we’ve missed anything, let us know and we can add it to the Library.

Books HD” by Abee5 is licensed under CC BY 2.0.

Websites

Medicines for Children

The main UK website to help families to use medicines. The MINIMEDs project will be working with MfC to improve their resource or suggest new ways to support families to use medicines.

Medicines For Children – We provide practical and reliable advice about giving medicine to your child

National Institute for Health and Care Research

Sometimes called the NIHR for short, the NIHR has kindly funded this project.

National Institute for Health and Care Research | NIHR


Books

A library wouldn’t be complete without a book list! Here are the books that have informed and inspired the project.

Still Not Safe” by Wear and Sutcliffe

The Wounded Storyteller” by Arthur Frank

The Illness Narratives” by Arthur Kleinman

Somebody I Used To Know” by Wendy Mitchell

Metamorphosis: Life in Pieces” by Robert Douglas-Fairhurst


Theory

Theory is important and so it has got its own section. Theory helps us to understand the complicated world we live in. It provides the scaffolding for us to build ideas and knowledge in an organised way, to make sense of the complicated world around us.

The main theory we are using is called “Moments of Resilience” written by Professor Carl Macrae. If you want to learn more about this, you can read the published article here:

Moments of Resilience: Time, Space and the Organisation of Safety in Complex Sociotechnical Systems | SpringerLink

The clever bit about our research has been to combine the theory with a particular method from the research world. This is called “Qualitative Longitudinal Research” or shortened to LQR. LQR put simply is research that happens over many points in time. There is a good paper written recently that explains the method and why it can work so well when learning about people’s experiences.

Why go back?: Advantages and challenges of longitudinal qualitative research in social pharmacy, and recommendations for social pharmacy researchers – PubMed


Outputs

These are things that have been made by the project and published online via a link. In date order:

2026

Frontiers | Disruptions to safety and adaptations experienced by parents and caregivers who administered prescribed medicines to children at home: a systematic review using a framework synthesis

2025

The resilience of parents and carers who administer medicines to children at home: a qualitative systematic review protocol | Systematic Reviews | Full Text

2024

Harm to a child caused by the off-label use of prochlorperazine maleate tablets due to the discontinuation of licensed prochlorperazine mesilate liquid in the UK | European Journal of Hospital Pharmacy (bmj.com)

2023 and earlier…

Evaluation of a research prioritisation event for parents who administer medicines at home | BMJ Paediatrics Open

Administering medicines safely at home: using an evidence based approach to help a family with complex health needs | Archives of Disease in Childhood (bmj.com)

2021

Administering medicines safely to children at home: learning from families – The Pharmaceutical Journal (pharmaceutical-journal.com)

Families are struggling to use medicines at home — we must truly involve them in their own safety – The Pharmaceutical Journal (pharmaceutical-journal.com)