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I am pleased to share with you that our research study that is listening to and learning from parent experiences is now open for business. In fact, we have already had the first family join the study. This (admittedly slightly awkward) photo was taken after Jenni and Chris had done their first interview. Here they…

Over the years, the systems that control medicines have become overwhelming large and complex. This is both good and bad. The good side is that information about childrens’ medicines is much more available than it was when I started my career 20 odd years ago. Things like the BNF for Children and www.medicinesforchildren.net are really…

Whilst waiting for NHS approval for the study, I took a trip to Wakefield to visit the Hepworth art gallery. I had not visited before, but I had heard of an exhibition that looked interesting and had some overlap with our research. This is what the official website says: Caroline Walker (b.1982, Dunfermline) is known…

Whilst I continue to wait for NHS hospitals to let me start the research, here is something I have been putting together for a while now. I hope you enjoy reading it! Hopefully we all get the chance to enjoy playing games every now and then. Although I admit as I have got older I…

Hello! Last month we had our latest parent advisory group meeting. We talked about loads of stuff, including: I have made a video so you can see what the meeting was like: I will also upload the report in the next few days to the PAG section of our website. This will include the feedback…

Hello, First off, I am sorry there has been a bit of a gap between postings. But rest assured that there is a lot going on at MINIMEDs HQ. I have actually started quite a few blog posts, but just not finished any yet. This is mainly because they involve consultation work with families and…

In January it was time for us to meet again. This was the third meeting of our parent advisory group. I am sorry this post is a little late, but this is because I have been on a ‘content creation’ course at the university. This has included video editing, which I have used to create…

Usually I see an automated email in my inbox and think nothing of it, but sometimes an email comes through that sparks something to life. Today, I received an email telling me that some researchers had ‘cited’ a piece of work I did back in 2021. A citation (past term = ‘cited) is when someone…

I have spoken before about NIHR, who are the people who pay for this research. Once a year they host a meeting where all the researchers they give money to can come together to meet each other, share ideas and learn new things. This year the meeting was in November 2024, and held at The…

We are very pleased to share the news that our systematic review protocol has been published. Find it here (<–click me). Think of a protocol a bit like a recipe. It contains a list of instructions that shows how we are going to do the review. The idea being that if somebody else wanted to…