Parent Advisory Group – June 2025

Hello!

Last month we had our latest parent advisory group meeting.

We talked about loads of stuff, including:

  • Research update (literature review is almost finished, and research study with families is starting at NHS hospitals this summer).
  • Looking at real life phone calls from parents experiencing problems with medicines.
  • Listening to ideas to improve support given to families.
Examples of problems with medicines, based on real life reports made by parents.

I have made a video so you can see what the meeting was like:

Video summary of the meeting.

I will also upload the report in the next few days to the PAG section of our website. This will include the feedback given by families about some ideas for improving support. This includes Dr Dog!

Dr Dog – Named by our Young Advisors!

Once again, thank you to everyone who attended or otherwise supported the event. There is so much good work going on at the moment, it’s going to great to share it when it’s a bit further down the line.

Making our own toys!


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