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Hi everyone, Hibbah here! On World Prematurity Day I had the privilege of assisting at a vibrant stall with Stephen Morris, dedicated to supporting research on delivering medications at home i.e. the MiniMeds study. As someone who was born prematurely (I was 24-weeks old!), this experience was especially meaningful – it truly felt like a Read more

The second part (and slightly delayed) blog about networking I have been doing is about a group based at the university called ‘CHORAL’. This stands for Child Health Outcomes Research At Leeds. CHORAL is also a new group of people, who share the aim to improve the lives of families living with health needs around Read more

MINIMEDs is a young and small project, a bit like an infant! If we are going to be successful we need to find people who can show us where to go and how to get there. We need to walk before we can run! I will do two blog posts to talk about the two Read more

On the 29th of June we held our second parent advisory group (PAG) meeting. It was nice to see everyone again, and we had 6 parents come along this time, a playworker called Eleanor and quite a few children too! The meeting was split into 3 parts. 1st part – Update on project progress Me Read more

One way of sharing our ideas and opinions about how medicines should be used is by getting stuff published. Sometimes people say ‘publications’, or ‘get published’. They mean the same thing. The good thing about publications is that this is the language of professionals, academics and policy makers (e.g politicians, hospital bosses, etc.). It is Read more

Time is ticking along, and I am making good progress behind the scenes. But there isn’t exactly anything from my research that is photo worthy at the moment! To get into a hospital and talk to families (and later visit them at their homes) you need permission from some people called the NHS Health Research Read more

I wish everyone a happy new year for 2024. I am busy getting prepared for our first Parent Advisory Group meeting at the end of the month. For me it’s a very exciting time and I hope is the start of a lot of great work this year and beyond! I am hoping we can Read more

Today we celebrate world prematurity day and everything it means to families and communities. I visited the Thackeray Museum by St James’s Hospital in Leeds to join in the celebrations. This project was supported from the beginning by the Neonatal Unit at Leeds, and so I am grateful for everyone who have shared their experiences, Read more

The Neonatal and Paediatric Pharmacy Group (NPPG for short) is a national network in the UK of pharmacy professionals who are interested in medicines use in children and young people. There is a conference every year, usually in November. And if you are brave enough, you can go up on stage and talk about a Read more